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Archief activiteiten

Partnership voor Langdurige Zorg en Dementie

  • Symposium ‘Care and Place’

    Ter gelegenheid van Anneliekes verdediging op 4 juli 2019 vond er op de antropologieafdeling van de UvA een symposium plaats over ‘plek/plaats’ en ‘zorg’ op 5 juli 2019. Het programma bestond uit presentaties van etnografisch veldwerk door Ingunn Moser, Natassia Brenman, Olivia Kilias en Kristine Krause. Het symposium werd bijgewoond door ca 20 wetenschappers.

    Verdediging Annelieke Driessen

    Op 4 juli 2019 verdedigde Annelieke Driessen in het openbaar haar proefschrift ‘A good life with dementia: Ethnographic articulations of everyday life and care in Dutch nursing homes’ (of in het Nederlands: ‘Een goed leven met dementie: etnografische verkenningen van dagelijks leven en zorg in Nederlandse verpleeghuizen.’). In haar onderzoek ging Annelieke op zoek naar andere manieren van leven met dementie dan het alombekende beeld van plantjes, en lege omhulsels ons voorspiegelt. Ze zocht naar manieren van leven met dementiedie ruimte maken voor wat mensen met dementie zelf waardevol vinden. Op zoek naar deze alternatieve manieren van leven met dementie liep ze lange tijd mee op de dementie-afdelingen van drie verzorgings- en verpleeghuizen, in het dagelijkse werk van de verzorgenden en fysiotherapeuten, met bezoekende familieleden en met de bewoners zelf. Haar bevindingen beschreef ze in haar proefschrift. De publiekelijk toegankelijke delen van het proefschrift kunt u hier vinden. Een Nederlandse samenvatting is hier in te zien. De UvA schreef tevens een langer bericht over Annelieke’s werk, ook in het Nederlands.

  • Dialoogavonden en dialoogwerkgroepen

    De dialoogavonden met zorgprofessionals, mantelzorgers en mensen met dementie, gefinancierd door zwaartepunt Global Health van de UvA in samenwerking met het Ben Sajetcentrum. 2014-heden.  Tijdens de dialoogbijeenkomsten presenteren de promovendi van de onderzoeksgroep Antropologie van de Zorg uitkomsten van de onderzoeken die zij deden op verschillende plekken in de langdurige zorg in Nederland. Aan de hand van een thema gaan zij over deze uitkomsten in gesprek met mensen uit de praktijk: zorgmedewerkers, mantelzorgers, en mensen met dementie. Zo wisselen zij ideeën en ervaringen rond het thema uit. De avond begint met soep en brood en een korte presentatie over de lopende studies rond het thema. Vervolgens gaan de promovendi met de aanwezigen als groep in gesprek en wisselen ideeën en ervaringen uit. 

    Table 1: Overview of dialogue meeting

    Nr.

    Date 

    Title

    Summary

    1

    19-02-2015

    Kick-off dialogue meeting

    The first meeting started with elevator pitches of the research projects, followed by discussion in sub-groups of the research topics.

    2

    20-05-2015

    Self-reliance and quality of life 

    Susanne van den Buuse’s presentation questioned the link made between self-reliance and quality of life for nursing home residents. Afterwards, cases were discussed. 

    3

    01-10-2015

    Searching, making and maintaining contact

    Annelieke Driessen and Laura Vermeulen addressed questions of maintaining contact with the social and physical world in a life with dementia. The groups looked into normative interpretations and conflicting values around dementia. 

    4

    28-01-2016

    Suffering and dementia

    Natashe Lemos Dekker and Silke Hoppe spoke to the theme of suffering. Responses to the presentation and personal and shared experiences with suffering were discussed in smaller groups.

    5

    19-05-2016

    Written impressions

    Paula Irik and Irene Kruijssen collected utterances of people with dementia, which they called ‘diamonds’. With participants they discussed how these ‘diamonds’ affect their readers. 

    6

    29-09-2016

    Daily wanting in dementia care

    Annelieke Driessen presented what care workers deem ‘good’ in care encounters in which people with dementia want something other than their carers, providing from her fieldwork (Driessen 2017). Group discussions touched on the role of family members and the specificities of dementia care.

    7

    27-10-2016

    The Dementia Social Trials 

    Hugo van der Wedden presented the applied work conducted by Professor Anne-Mei The. He discussed how stories collected in ethnographic studies were transformed into interventions for a social trial in dementia care.

    8

    01-12-2016

    ‘Measuring’ versus ‘knowing’ in dementia care

    Laura Vermeulen, Marjon van den Broek, Bart Niek van der Zedde and Titia Daniels discussed what ‘knowing’ may mean in the home setting of a person with dementia. Bringing together examples from their work in different disciplines, they explored with the group a case in which the outcomes of ‘knowing on the basis of experience’ and ‘measuring’ conflicted. 

    9

    29-01-2017

    Picturing dementia

    Following the publication of a newspaper article written by Laura Vermeulen and Mart Vegt (Vermeulen 2016), which featured an othering picture, this evening addressed how people with dementia are depicted in images. Facilitated by Annelieke Driessen, Laura Vermeulen and Els Roding, participants experimented with drawings and text, and questioned how minority groups could be depicted without relying on stereotypes.

    10

    16-02-2017

    End of life with dementia

    Natashe Lemos Dekker and Mieka Vroom touched on trust, powerlessness and uncertainty at the end of life with dementia. The group explored how, without trying to find one single narrative, different realities can be acknowledged and given space.

    11

    16-03-2017

    Tensions in life and work with dementia

    Annelieke Driessen and Kristine Krause introduced a list of ‘burning issues’ in the lives of those who work and live with dementia. Seated in a circle, the group refined the list, added issues that were consequently prioritised, and discussed issues such as the tension between safety and freedom. 

    12

    13-04-2017

    Sharing experiences

    Silke Hoppe presented on empathy and sharing experiences in the context of her research on early-onset dementia (Hoppe 2018a). The groups discussed how they reached understanding using the method of Socratic dialogue. 

    13

    23/24-06-2017

    Dementia and the Good Life

    During this two-day participatory conference, PhD candidates and dialogue evening participants held workshops together on the topic of their joint dialogue evenings project and PhD candidates’ studies for a broad audience from the field. How is a good life with dementia done? 

    14

    14-09-2017

    Fireplace meeting

    The conference was evaluated and initial ideas for this article were discussed.

    15

    08-11-2018

    The dialogue paper

    After a presentation of the overall argument of this article, each group took up one part of the argument, discussing its validity and sharing additional reflections. Participants also decided they wanted to continue with the dialogue meetings, joining the PhD candidates in organising them.

    16

    11-01-2019

    Mart’s wish for euthanasia

    This meeting was issues by Mart Vegt. With the support of Kristine Krause, Laura Vermeulen, Margriet de Zwart and Leny van Dalen, Mart told the audience of his wish for euthanasia. The audience asked questions and shared similar and alternative outlooks on life.

    17

    28-03-2019

    Mutual dependency in care relations

    Silke Hoppe discussed literature and personal experiences on the topic of dependency. For the first time, the dialogue meeting took place in a nursing home. Participants discussed their experiences with asking for and providing help. 

    18

    11-04-2019

    Do people with dementia speak ‘Dementees’? Paradoxes of recognition

    Kristine Krause, Irene Kruijssen, Paula Irik and Laura Vermeulen discussed how to open up spaces for equality without exacerbating differences. This question was explored taking as a case Paula and Irene’s plea to recognise utterances of people with dementia as a language in its own right. 

    19

    23-05-2019

    Silence and ‘doing nothing’

    Dominant imaginaries depict nursing homes as places where ‘nothing’ happens. Based on her fieldwork, Ilja Brugman invited participants to observe life on the ward and to reflect together on the many ways they had observed of making contact. 

    20

    13-06-2019

    Intimacy

    Margriet de Zwart, Rita Slooten, Laura Vermeulen and Kristine Krause reflected together with participants on how boundaries in intimacy and sexuality change throughout the life course and with dementia. 

  • Short intensive course ‘Voices out of order’

    Drie daagse intesieve cursus over hoe mensen bij onderzoek te betrekken die niet aan de norm voldoen van coherente communicatie en wiens stemmen dus vaak niet worden opgenomen in wetenschappelijk onderzoek. Georganiseerd door Melissa Sebrechts, Laura Vermeulen en Natashe Lemos Dekker. 11 tot 13 Juni 2014.